Branton Lum

 

Branton was born on January 16, 2016, the youngest of 4 children. During prenatal scans, it appeared that Branton’s head was larger than average, and when he was born, this appeared to be the case. Branton’s head size was determined to be in the 90th percentile for his age, and appeared to be misshapen with the absence of soft spots.  At his 6 week checkup, Branton’s mother expressed concern to his pediatrician that he did not seem to be developing as rapidly as he should have been.  A referral was made to Syracuse University Hospital where Branton was evaluated in March by a team of therapists and doctors.  Blood tests and genetic testing were done, but with no definitive diagnosis. 

Branton’s pediatrician referred him to the Otsego County Early Intervention program.  After evaluation, it was determined that Branton would benefit from both physical and occupational therapy, since he was not yet able to hold his head up, was experiencing core weakness, and was not progressing toward developmental milestones. He has received physical therapy once weekly since July, and was able to have occupational therapy from July until September when the therapist resigned. These services have not resumed, because of the unavailability of a therapist.

In September, at seven and a half months old, Branton was finally seen by a neurologist, who ordered a CT scan and MRI, both which showed nothing of significance. A follow-up visit with a neurosurgeon at Syracuse, no diagnosis or cause for Branton’s delays could be determined.

At eleven months old, Branton is still not able to sit independently, and is able to hold his head erect for no more than a few minutes at a time. Because of his neck and core weakness he is not able to creep or crawl when he is on the floor with his brothers.